Desperate times help us to take desperate measures. When the medical teams tell people that there is nothing more which can be done for their cancer therapy… some people take on “the world”.
A great story:
# GitLab co-founder Sid Sijbrandij was diagnosed with osteosarcoma. All the standard therapies and clinical trials ran out. He decided to do things in his way. He started using AI platforms to study his tumour type and data. He collected teams for personalized experimental treatments, and open-sourced 25 TB of medical records. He has since then had really good cancer control (since 2025). You can read the story on https://sytse.com/cancer/
This takes time (and possibly lots of money), but is a start. As AI and software platforms get cheaper and more accessible, this trend will keep rising.
I can imagine people outsourcing their data to get help from across the world.
I recently watched a Netflix series called: “Diagnosis”. It is a collaboration between Dr Lisa Sanders and The New York Times. They try to help people with rare and undiagnosed illnesses. Their stories are outsourced online and people from across the world gives suggestions. https://www.netflix.com/title/80201543
Medicine is changing. Times are changing. People are no longer willing to just take “no more options” as answer. Exciting times (possibly).
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